(Topic ID: 213844)

Pinside Medical Support Thread!

By Frippertron

5 years ago


Topic Heartbeat

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  • 305 posts
  • 51 Pinsiders participating
  • Latest reply 3 years ago by PinMonk
  • Topic is favorited by 10 Pinsiders

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#1 5 years ago

Hi, I'm Jeff. I have had a stroke, multiple mini strokes, open heart surgery, serious spinal problems, and sepsis.I wanted to start a thread for Pinsiders who are sick or have family members who are, as a means of support. Please post any medical problems or comments you would like to make. This community is awesome and we should comfort those with cancer or about to have surgery/ other ailments. I'm aiming for a supportive group here to help your fellow pinheads in their time of need.

#2 5 years ago

This is a good thing, every little bit helps. Good luck to you.

I just got word that my Aunt fell yesterday. She is 73. Cracked a neck vertebrae, trouble breathing. In ICU on intubation and then some. Eyes flutter periodically.but little EKG activity. Tests in progress but this sounds really bad.

Our time here is precious.

#3 5 years ago

I took a very hard fall in the shower i slipped in the tub from hair conditioner awhile back and i damaged 3 discs in my neck and 3 in my back and i have never been the same since.I have had injections done but no help or relief,My whole right side my hand,arm,neck and back are out of commission.My hand is doing much better than before i couldnt even move my fingers,I was told i had corporal tunnel syndrome there for awhile then or now i am told by the docs that i have something called crps(complex regional pain syndrome).I am still on heavy meds which i dont like but i have no choice,I am the type of person who ever hardly took any meds and it was a whole different experince for me taking meds and honestly i started acting and talking very bad/rude/upset to people around me and here on Pinside not realizing it and I was banned which was the right thing to do.I look back at my old posts and i say to myself my God i cant believe i said those things and I am very sorry to all of you for doing that.Anyway thank you for starting this thread it is a good feeling to open up and talk about what you been or going through.

#4 5 years ago
Quoted from pinmike:

I took a very hard fall in the shower i slipped in the tub from hair conditioner awhile back and i damaged 3 discs in my neck and 3 in my back and i have never been the same since.I have had injections done but no help or relief,My whole right side my hand,arm,neck and back are out of commission.My hand is doing much better than before i couldnt even move my fingers,I was told i had corporal tunnel syndrome there for awhile then or now i am told by the docs that i have something called crps(complex regional pain syndrome).I am still on heavy meds which i dont like but i have no choice,I am the type of person who ever hardly took any meds and it was a whole different experince for me taking meds and honestly i started acting and talking very bad/rude/upset to people around me and here on Pinside not realizing it and I was banned which was the right thing to do.I look back at my old posts and i say to myself my God i cant believe i said those things and I am very sorry to all of you for doing that.Anyway thank you for starting this thread it is a good feeling to open up and talk about what you been or going through.

Hang in there! The most painful thing in my life was herniating three discs in my lower back. Just take it easy and listen to the doctors. Be careful with the anti-inflammatory medicine. That stuff can cause major stomach problems. A good mattress helps a lot too. Take care of yourself.

#5 5 years ago

So I just saw my cardiologist. I've had Atrial Fibrillation for awhile now, had pretty bad symptoms including TIA'S/mini strokes until I started taking the blood thinner Eliquis. Well he either wants me to go for a cardioversion or a catheter ablation to correct the problem. Does anyone have any experience with this?

#6 5 years ago
Quoted from pinmike:

I am still on heavy meds which i dont like but i have no choice,I am the type of person who ever hardly took any meds and it was a whole different experince for me taking meds

If medical marijuana is legal in your state (I think it is), you should look into edibles or drinks for pain relief. People I know that use it for pain relief say it works great (you might have to try a few different strains until you get one that works for you) and it's much less addictive and dangerous than opiods. Almost zero risk of an OD.

#7 5 years ago

You know it's embarrassing to say but I don't care. With my back problems, I was prescribed opiates for many years. I ended up with unrelated heart problems and wanted to get off the meds. My doctor didn't recommend it because of my heart but there was a new medicine for people trying to get off opiates called Suboxone. Well I started that and have been on the medicine for a decade. I don't feel a thing from it and I have to take it at least every 48 hours or I have violent withdrawal symptoms. If you have a high opiate tolerance when you start taking the drug, it's like taking an aspirin. I wish I never started It. Every month I have to sit in a waiting room for 2 hours with a bunch of heroin addicts. I don't have many options with my health, so I just keep taking the medicine, it sucks. Since it's a long acting drug and how long I've been on it, the doctor thinks I would be in withdrawal for months. Not something I can physically or mentally handle. The more information that comes out on that drug suggest it should only be used briefly and they've had me on it for 10 years!

#8 5 years ago
Quoted from Frippertron:

Hang in there! The most painful thing in my life was herniating three discs in my lower back. Just take it easy and listen to the doctors. Be careful with the anti-inflammatory medicine. That stuff can cause major stomach problems. A good mattress helps a lot too. Take care of yourself.

Thank you,I do have a good mattress but i have a bad habit of placing my hand under the pillow and this causes my hand and arm to fall asleep.Thats when the pins and needles start and its very very painful.

Quoted from Frippertron:

You know it's embarrassing to say but I don't care. With my back problems, I was prescribed opiates for many years. I ended up with unrelated heart problems and wanted to get off the meds.

No don't be embarrassed a lot of people are on them but they don't abuse them,I'm on percocet 10mg/325 three times a day.I had 2 stent surgeries back in 2011 due to a heart attack(I know i sound worst than a car wreck..Lol!!)..From what I hear suboxone is more additive than painkillers.I would like to get off these meds but it seems like i'm stuck in the middle,I'm damned if i take them and damned if i stop due to the round a clock 24hr pain.I heard withdrawals are very very scary and horrifying.

Quoted from PinMonk:

If medical marijuana is legal in your state (I think it is), you should look into edibles or drinks for pain relief. People I know that use it for pain relief say it works great (you might have to try a few different strains until you get one that works for you) and it's much less addictive and dangerous than opiods. Almost zero risk of an OD.

Yes its legal and i have had the option of getting a medical marijuana card but here's the ass kicker every M.D. doctor you go to will not prescribe or see you if you have THC in your system.I have to take a urine sample every month and if any THC is found they will run you out of there they won't even prescribe you regular meds such as blood pressure,cholestral,etc.,They tell you this from the very begining and you must sign a contract or waiver that you understand these rules

#9 5 years ago
Quoted from Frippertron:

So I just saw my cardiologist. I've had Atrial Fibrillation for awhile now, had pretty bad symptoms including TIA'S/mini strokes until I started taking the blood thinner Eliquis. Well he either wants me to go for a cardioversion or a catheter ablation to correct the problem. Does anyone have any experience with this?

My father suffered a major stroke years ago and he is still paralzied from it on his right side,They had him on blood thinners for awhile but they took him off of them.From what i understand your only supposed to be them for a little while.

#10 5 years ago
Quoted from pinmike:

Yes its legal and i have had the option of getting a medical marijuana card but here's the ass kicker every M.D. doctor you go to will not prescribe or see you if you have THC in your system.I have to take a urine sample every month and if any THC is found they will run you out of there they won't even prescribe you regular meds such as blood pressure,cholestral,etc.,They tell you this from the very begining and you must sign a contract or waiver that you understand these rules

Must be a midwest thing. Definitely not the case in California. That's pretty terrible that an MD whose JOB is to make people BETTER would punish you for using a LEGAL substance that is less likely to KILL you to manage your pain. Hopefully it changes in your part of the country. Legalization should help, but attitudes and policies take time to change.

#11 5 years ago
Quoted from PinMonk:

Must be a midwest thing. Definitely not the case in California. That's pretty terrible that an MD whose JOB is to make people BETTER would punish you for using a LEGAL substance that is less likely to KILL you to manage your pain. Hopefully it changes in your part of the country. Legalization should help, but attitudes and policies take time to change.

I agree!!! Big pharma plays a big role in this matter,They would rather have you on pills to make the money.It's sad but true

#12 5 years ago

I'm fat and the doctor put me on a diet. I need some support!

#13 5 years ago
Quoted from pinmike:

I agree!!! Big pharma plays a big role in this matter,They would rather have you on pills to make the money.It's sad but true

Which is why DEA was trying to criminally charge at least one of them, but were stripped of the authority by the administration. Pathetic.

#14 5 years ago
Quoted from CrazyLevi:

I'm fat and the doctor put me on a diet. I need some support!

Ebay, $11.99. Problem obscured.

fattie (resized).jpgfattie (resized).jpg

#15 5 years ago
Quoted from Frippertron:

Atrial Fibrillation for awhile now, had pretty bad symptoms including TIA'S/mini strokes until I started taking the blood thinner Eliquis. Well he either wants me to go for a cardioversion or a catheter ablation to correct the problem. Does anyone have any experience with this?

Yah my wife had this done a couple of years back for SVT. It sucked and unfortunately her issue has returned. Basically, the heart finds new electrical paths after the ablation. So she will have to get it done again at some point (most likely). Right now she tries to do manual resets and the last time we had to take a trip to the ER to get a chemical reset. Its pretty scary when she gets an episode.

#16 5 years ago
Quoted from Frippertron:

So I just saw my cardiologist. I've had Atrial Fibrillation for awhile now, had pretty bad symptoms including TIA'S/mini strokes until I started taking the blood thinner Eliquis. Well he either wants me to go for a cardioversion or a catheter ablation to correct the problem. Does anyone have any experience with this?

There's another level after ablation if that doesn't work where they basically chop up your heart and put it back together differently. My friend's dad had to go to that surgery because the cardioversion and then ablasions didn't work for very long. His recovery SUCKED, but it's been a few years now (3?) and it hasn't come back, so probably successful.

There's a new treatment, though, that may be the new standard if initial fantastic results hold up:
https://www.nytimes.com/2017/12/13/health/heartbeat-tachycardia-radiation.html

#17 5 years ago
Quoted from bigdaddy07:

Yah my wife had this done a couple of years back for SVT. It sucked and unfortunately her issue has returned. Basically, the heart finds new electrical paths after the ablation. So she will have to get it done again at some point (most likely). Right now she tries to do manual resets and the last time we had to take a trip to the ER to get a chemical reset. Its pretty scary when she gets an episode.

It is scary! First couple episodes I thought I was dying right there. That's when I had the first mini stroke. My speech went wrong. Real confused and bad headache and numbness

#18 5 years ago


Quoted from CrazyLevi:I'm fat and the doctor put me on a diet. I need some support!

Too bad he can't give you anything for growing hair.

#19 5 years ago
Quoted from PinMonk:

Which is why DEA was trying to criminally charge at least one of them, but were stripped of the authority by the administration. Pathetic.

Only in the good ole U.S.A.

#20 5 years ago
Quoted from PinMonk:

Ebay, $11.99. Problem obscured.

Hahaha!!!!

#21 5 years ago
Quoted from pinmike:

I agree!!! Big pharma plays a big role in this matter,They would rather have you on pills to make the money.It's sad but true

The worst is that Lipitor. They put me on it at 33 years old. I had horrible muscle issues and blurry vision. I cut my dose and that helps. For some reason they prescribe that drug to everyone and the side effects are horrendous

#22 5 years ago
Quoted from CrazyLevi:

I'm fat and the doctor put me on a diet. I need some support!

Try duct tape over your mouth yet?

#23 5 years ago
Quoted from Frippertron:

You know it's embarrassing to say but I don't care. With my back problems, I was prescribed opiates for many years. I ended up with unrelated heart problems and wanted to get off the meds. My doctor didn't recommend it because of my heart but there was a new medicine for people trying to get off opiates called Suboxone. Well I started that and have been on the medicine for a decade. I don't feel a thing from it and I have to take it at least every 48 hours or I have violent withdrawal symptoms. If you have a high opiate tolerance when you start taking the drug, it's like taking an aspirin. I wish I never started It. Every month I have to sit in a waiting room for 2 hours with a bunch of heroin addicts. I don't have many options with my health, so I just keep taking the medicine, it sucks. Since it's a long acting drug and how long I've been on it, the doctor thinks I would be in withdrawal for months. Not something I can physically or mentally handle. The more information that comes out on that drug suggest it should only be used briefly and they've had me on it for 10 years!

Look into kratom as it greatly helped me get off of a nightly too much vodka habit. Apparently works well / better for people with opiate dependencies.

#24 5 years ago
Quoted from Frippertron:

The worst is that Lipitor. They put me on it at 33 years old. I had horrible muscle issues and blurry vision. I cut my dose and that helps. For some reason they prescribe that drug to everyone and the side effects are horrendous

Oh yes i was told that Lipitor is really really bad side effects.

Quoted from poppapin:

Try duct tape over your mouth yet?

Hahaha!! That's really funny

#25 5 years ago

Posts like this make me remember why Pinside is still a cool place. To all who are struggling, you are not alone. Keep up the fight and play those pins when you get down! Spreading love to all of ya.

#26 5 years ago
Quoted from barakandl:

Look into kratom as it greatly helped me get off of a nightly too much vodka habit. Apparently works well / better for people with opiate dependencies.

https://www.npr.org/sections/thetwo-way/2018/04/04/599443476/fda-orders-an-unprecedented-recall-after-kratom-company-ignored-its-requests

#27 5 years ago

fear mongering by big pharma and FDA. Ban lettuce, sprouts and Chipotle restaurants as many more are sickened by that. I make mine into a tea which would kill any bugs like salmonella.

After over prescribing incredibly addictive opiates and having the spotlight finally come on them they want to keep people $$$ coming in with maintenance opiates like suboxone. Kratom is a direct threat to profits so they want to squash it any way possible. Follow the $$$. Alcohol companies, big pharma, FDA are all dirty AF.

#28 5 years ago
Quoted from barakandl:

fear mongering by big pharma and FDA. Ban lettuce, sprouts and Chipotle restaurants as many more are sickened by that. I make mine into a tea which would kill any bugs like salmonella.
After over perscribing incredibly addictive opiates and having the spotlight come on them they want to keep people on maintenance opiates like suboxone. Kratom is a direct threat to profits so they want to squash it any way possible. Follow the $$$. Alcohol companies, big pharma, FDA are all dirty AF.

It's funny years ago people at the pain specialist used to talk about buying dried poppy pods and crushing them and making tea, instead of dealing with pharma. This essentially made straight up drinkable opium that a lot of people were arrested for growing and eBay was reprimanded for selling around 11-12 years ago. Look up poppy pod tea.

#29 5 years ago

I understand St. John's Wort is an excellent alternative where cannabis isn't legal.

#30 5 years ago
Quoted from o-din:

I understand St. John's Wort is an excellent alternative where cannabis isn't legal.

Literally this month our first dispensary in Scranton is opening. I'm gonna talk to my doctors.

#31 5 years ago

I was just diagnosed with Multiple Scrolsis (MS) in Oct. Im 43. They originally thought I possibly had a stroke untill the MRI.
I'm able to get around now, but fuck was it scary.
Woke up with pins and needles all over couldn't move my right hand or leg and the right side of my face was all droopy.

For the first couple of months right after it felt like I had my finger in a light socket. And was getting electrocuted.

I was prescribed medical cannibis right away and it helps emensly.
Since Oct I have been in emergency 6 times. Seen 12 different drs. Hooked up to 1 week of IV steroids 6 seperate times. Fallen a bunch. Went blind in my right eye for 3 weeks over Christmas. Have massive migraines. Dizzy spells etc,

Its the most fucked up thing you can imagine. Basically the nerve signals in your brain and spine are shorting out. Because your body is attacking and destroying the nerve insulation.

Your body either does what you tell it, or doesn't. Or spasms or gives you a shooting pain that makes you feel like you want to puke.
All depending on where the signal decides to jump/ short to.

Stuck with this forever and it will gradually get worse the older I get.

#32 5 years ago
Quoted from Frippertron:

You know it's embarrassing to say but I don't care. With my back problems, I was prescribed opiates for many years. I ended up with unrelated heart problems and wanted to get off the meds. My doctor didn't recommend it because of my heart but there was a new medicine for people trying to get off opiates called Suboxone. Well I started that and have been on the medicine for a decade. I don't feel a thing from it and I have to take it at least every 48 hours or I have violent withdrawal symptoms. If you have a high opiate tolerance when you start taking the drug, it's like taking an aspirin. I wish I never started It. Every month I have to sit in a waiting room for 2 hours with a bunch of heroin addicts. I don't have many options with my health, so I just keep taking the medicine, it sucks. Since it's a long acting drug and how long I've been on it, the doctor thinks I would be in withdrawal for months. Not something I can physically or mentally handle. The more information that comes out on that drug suggest it should only be used briefly and they've had me on it for 10 years!

I am sorry to hear this. It is really a nasty drug. My friend battled with opiates for years and they put him on suboxone. He went into very deep depression and ended up taking his life. I really do hope you can find a way to stop taking it.

#33 5 years ago
Quoted from Frippertron:

It's funny years ago people at the pain specialist used to talk about buying dried poppy pods and crushing them and making tea, instead of dealing with pharma. This essentially made straight up drinkable opium that a lot of people were arrested for growing and eBay was reprimanded for selling around 11-12 years ago. Look up poppy pod tea.

I was a dumb teenager once and know about the poppy pods... Problem with poppy pod tea is its just as addictive if not more than pills. The "ornamental" poppy loophole was one that was probably good to be closed off.

If you want to get off Suboxone i really think you could come up with a taper or go as long as you can until withdrawl is kicking then switch to kratom. Taper down Kratom doses, which is supposed to have a much more managable withdrawl than subs, and then jump off kratom and be clean.

#34 5 years ago
Quoted from Frippertron:

Literally this month our first dispensary in Scranton is opening. I'm gonna talk to my doctors.

Great! I tell you it's been a comedy of errors since CA first legalized it for medical use and now recreational use. Can't tell who is selling it legally and who isn't. But it's readily available. They will even deliver it to your home. One enterprising dude was even using a drone for deliveries but he got shut down.

#35 5 years ago
Quoted from erak:

I was just diagnosed with Multiple Scrolsis (MS) in Oct. Im 43. They originally thought I possibly had a stroke untill the MRI.
I'm able to get around now, but fuck was it scary.
Woke up with pins and needles all over couldn't move my right hand or leg and the right side of my face was all droopy.
For the first couple of months right after it felt like I had my finger in a light socket. And was getting electrocuted.
I was prescribed medical cannibis right away and it helps emensly.
Since Oct I have been in emergency 6 times. Seen 12 different drs. Hooked up to 1 week of IV steroids 6 seperate times. Fallen a bunch. Went blind in my right eye for 3 weeks over Christmas. Have massive migraines. Dizzy spells etc,
Its the most fucked up thing you can imagine. Basically the nerve signals in your brain and spine are shorting out. Because your body is attacking and destroying the nerve insulation.
Stuck with this forever and it will gradually get worse the older I get.

There's current research that MS may be related to the microbioiome of your gut and improving that with "good" bacteria and thinning out "bad" bacteria results in slowing or stopping the progression of the disease. It works in mice, and human studies are advancing.

https://multiplesclerosisnewstoday.com/2017/09/14/study-reports-that-gut-bacteria-may-drive-progression-of-multiple-sclerosis/

#36 5 years ago
Quoted from Frippertron:

It is scary! First couple episodes I thought I was dying right there. That's when I had the first mini stroke. My speech went wrong. Real confused and bad headache and numbness

Certain cities have started using Mobile Stroke units to get stroke treatment to patients quicker than the traditional ER method.

They can do a CT scan on scene and administer clot busting drugs too. In some cases the clots are gone before they make it to the OR.

Hopefully they come to a city near you in the future. Time until treatment makes a huge difference in recovery time.

#37 5 years ago
Quoted from Frippertron:

Literally this month our first dispensary in Scranton is opening. I'm gonna talk to my doctors.

That's the first thing I did after getting out of the hospital. My Dr was 100% for it. Has a specialist in his office. And I had my perscription in about 3 days. It was either that or opiates.

I just switched cannibis strains a week ago. After 6 months of the same stuff I was having to take more and more. And eventually maxed out my dosage. Now that I switched strains I'm back to the minium doses.

#38 5 years ago
Quoted from erak:

I was just diagnosed with Multiple Scrolsis (MS) in Oct. Im 43. They originally thought I possibly had a stroke untill the MRI.
I'm able to get around now, but fuck was it scary.
Woke up with pins and needles all over couldn't move my right hand or leg and the right side of my face was all droopy.
For the first couple of months right after it felt like I had my finger in a light socket. And was getting electrocuted.
I was prescribed medical cannibis right away and it helps emensly.
Since Oct I have been in emergency 6 times. Seen 12 different drs. Hooked up to 1 week of IV steroids 6 seperate times. Fallen a bunch. Went blind in my right eye for 3 weeks over Christmas. Have massive migraines. Dizzy spells etc,
Its the most fucked up thing you can imagine. Basically the nerve signals in your brain and spine are shorting out. Because your body is attacking and destroying the nerve insulation.
Stuck with this forever and it will gradually get worse the older I get.

I feel for you. My cousin is going through it. Best of luck my friend. If you need to vent, talk, or whatever use this thread or pm me personally please. I know it can be difficult to express your feelings to those around you. This thread is for pinheads united. I personally have a hard time talking about this stuff with my wife or close friends. I want a supportive community where you can talk about these things, without judgement, only support!

#39 5 years ago
Quoted from Frippertron:

I feel for you. My cousin is going through it. Best of luck my friend. If you need to vent, talk, or whatever use this thread or pm me personally please. I know it can be difficult to express your feelings to those around you. This thread is for pinheads united. I personally have a hard time talking about this stuff with my wife or close friends. I want a supportive community where you can talk about these things, without judgement, only support!

Thanks I appreciate it.

The thing I'm afraid most of is... it affecting my memory. I could care less about the walking and shit that will eventually happen. But I already know it has effected my thought process and speech somewhat.
And that honestly scares the shit out of me.

Normal-Brain-Mri-ePzT (resized).jpgNormal-Brain-Mri-ePzT (resized).jpg

#40 5 years ago

For any of you going through chronic pain need to look into Kratom it is a natural herb that imo works better for pain than opiates and it is much safer,cheaper and legal in almost every state.I've been taking it for years as needed with no side effects or withdrawals sometimes I take it everyday sometimes not for a week or more.Google it and if you have any questions feel free to pm me.it's also used to help get off opiates as it helps with withdrawal symptoms. pinmike I have a store near you if it's something you might like to try let me know and I'll give you some.

#41 5 years ago
Quoted from erak:

Thanks I appreciate it.
The thing I'm afraid most of is... it affecting my memory. I could care less about the walking and shit that will eventually happen. But I already know it has effected my thought process and speech somewhat.
And that honestly scares the shit out of me.

The best thing you can do and the hardest is to not think too much. Medicine is pretty good now and many with MS live long productive lives. Have confidence that things will work out my friend. Best of fortune to you and your family.

#42 5 years ago

Warning, thread has graphic images,

Six months ago, I had a sore ankle. Being a guy, I decided to tough it out.
That was a big mistake
After a week I decided to see a GP, they described antibiotics.
Three days later I woke to see a mess in my bed and my lower leg covered in black sores. OK, NOW it is time to go to emergency

Diagnosis; Necrotizing Fasciitis (flesh eating disease)
I had somehow cut my foot and let in a nasty bug, which was eating my leg muscles away from the inside
Three hours later I am in surgery. Afterwards, half of the skin on my lower leg was gone, and some muscle
My leg was bandaged with a plastic bandage, the tube is sucking out the crap from my leg
This is what I woke to;

I spent two weeks having the wound cleaned up, then I was shipped from my home city to a larger hospital, as that is the place to get reconstructive surgery done. A week of getting assessed there then off for more surgery

The wound will be covered by a skin flap and skin grafts
A skin flap is a piece of skin and muscle taken from another part of the body
A skin graft is a thin layer of skin scrapped from a third site

What my leg looked like after 11 hours surgery;
(the frame stayed on for three weeks)
What you are seeing is the untouched foot, skin flap, skin graft, and untouched rest of me

20% mortality rate
I am alive, I have my leg
it is now 6 months later, I have been back at work for a while, the leg has healed well, but still looks terrible.
I have some great scars and a good story

#43 5 years ago

Holy shit!

Quoted from PopBumperPete:

I have some great scars and a good story

And hopefully, no huge bill ....

All covered by the aussie system?

rd

#44 5 years ago
Quoted from PinMonk:

Must be a midwest thing. Definitely not the case in California. That's pretty terrible that an MD whose JOB is to make people BETTER would punish you for using a LEGAL substance that is less likely to KILL you to manage your pain. Hopefully it changes in your part of the country. Legalization should help, but attitudes and policies take time to change.

Agree with ya Vic. My old doctor told me to try weed out for anxiety. When I need it, it calms me right down.

#45 5 years ago
Quoted from rotordave:

Holy shit!

And hopefully, no huge bill ....
All covered by the aussie system?
rd

yup, all covered

#46 5 years ago

Wow. Did it start with cellulitis? (Lobster red and sore)

#47 5 years ago
Quoted from Frippertron:

So I just saw my cardiologist. I've had Atrial Fibrillation for awhile now, had pretty bad symptoms including TIA'S/mini strokes until I started taking the blood thinner Eliquis. Well he either wants me to go for a cardioversion or a catheter ablation to correct the problem. Does anyone have any experience with this?

I have had cardioversion done twice (both for A-Fib). The A-Fib started at the same time they discovered I had a mass on my kidney, thyroid cancer, and malignant lymphndes on the right side of my neck. Cardiologist put me on meds until they could get my other stuff resolved first. Well that took 3 years. Anyway, finally had the cardioversion and it went well. I felt great, but kicked back into A-Fib about 7 months later. After a second cardioversion, and finally getting insurance to approve a sleep study and get me a C-Pap machine, it seems to be at by now.

Both my cardioversions went well for me. it is a short process, but you do go under for it.

Let me know if you have any questions about it and I can do my best to assist you.

Chris

#48 5 years ago

Chris, I went for a sleep study too. I have moderately obstructive sleep apnea and have been on the C-pap for a month now. I feel better but still have the A-fib because of my valvular heart disease as well, kind of a A-fib double whammy. The problem I'm having is that my body is naturally jumping from A-fib to sinus rhythm frequently. I was gonna have a cardioversion last month, went to the hospital and was back in sinus rhythm. The doctor thinks I'm having bad symptoms because my body is not getting used to either rhythm. I'll keep you posted.

#49 5 years ago

I"ve had some issues of late, but not as bad as of the ones you guys are sharing. My sincere thoughts are with you all.

Been to Mayo twice now and one thing that they turned me on to and has helped immensely is changing my diet to all plant based. The research and science that surrounds it is without question, but the big food/dairy/meat and Pharma try to bury it due to no profit.

Start here.

https://nutritionfacts.org/

#50 5 years ago
Quoted from Methos:

I"ve had some issues of late, but not as bad as of the ones you guys are sharing. My sincere thoughts are with you all.
Been to Mayo twice now and one thing that they turned me on to and has helped immensely is changing my diet to all plant based. The research and science that surrounds it is without question, but the big food/dairy/meat and Pharma try to bury it due to no profit.
Start here.
https://nutritionfacts.org/

I went vegetarian after my first open heart surgery but stopped a few months later. I need to try something with my diet again. I gained a bunch of weight after I was put on the anti-seizure drug Lyrica. I put on 50 pounds from that drug, doctor switched me to Topamax and I leveled off.

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